Sunday, June 7, 2015

Memorial Day

Memorial Day was kind of played by ear. I didn't really have anything planned except a small bbq for the 5 of us. But then we decided to give my grandparents a visit. It's kind of pathetic that I've lived this close to their graves and haven't been there once since we moved here. It was super busy, but we got lucky and got a parking space really fast and found someone to help us find their headstones. It was fun sitting and telling my kids about them. I even sang the "Poochie Dog" song that Gina Granny used to sing. And then of course I told them about how my grandfather called all kids little creeps. Ha ha! I sure do miss them. 
Miles of course had to step on all the headstones despite our best efforts of trying to deter him. It was pointless in trying.
Then we decided to head to Provo and visit Dave's brother Michael. His headstone needed a little more cleaning up than my grandparents, but we were prepared.
After that, we visited Abby & Casey for a couple minutes and then ran a couple errands. We got home and made a dinner of hot dogs, chips, watermelon, and IBC root beer. Then the boys decided they wanted to the Highland Glen pond and play around, so Dave invited his brother John, his girlfriend and her kids along since it was John's birthday. It actually turned out to be a pretty fun evening. The boys played in the freezing water, Miles fed the ducks, and they even went out in the boat and fished a little, but Miles got pretty cranky there towards the end.

Miles' First Fish!

On May 23rd, Dave took Jett and Miles to the Highland Glen Park while I took Cruise on a date. I actually had no idea he was going to do this, but I guess Miles caught his very first fish! Dave told me that "Miles is the youngest Ybarra to ever catch a fish!" I guess it went pretty well and Miles was intrigued. They of course didn't keep the fish on account that they were just too small, but they still had fun showing Miles the ropes...er...lines. 

Cruise's 2nd Grade Graduation

Cruise was pretty excited about school ending. In fact, he asked me EVERY. SINGLE. DAY. for two months: "How many days until school is over?" Well, the day finally came and it, of course, was awesome. They had graduation in the morning and then afterwards was the school dance festival. He did awesome but I was only able to get video on my camcorder and not my digital camera, so I don't have any video for you. But he was spectacular!

At graduation, Cruise's teacher Mr. Harris had prepared a statement about each child as he presented each one of them with their diplomas. This was Cruise's:

Cruise,
Where to start with you kiddo...We love your enthusiasm for life- For you, everything is important, and potentially life-changing! We love your expressive eyes- and brows, the the way you can explain anything this is on your mind. We love your passion for learning, and for sharing all you have learned. Thank you for all of the incredible show-and-tells you have brought to us. "Behold!" will forever be a part of our classroom vocabulary because of you! Thank you for learning to be kind to others in our class- Kids crave your friendship!

We are so excited to watch you grow and become everything you want to become! We love you!

John Jay Harris, Suzanne Jones, Karli Poyfair, Connie Haws
Cruise has grown so much this past school year. He is catching up with his peers academically, he's learning how to not be so rigid, and he is learning how to make new friends. Despite all of his frustrations and struggling, he continues to keep trying. He continues to make inventions and think of new things or new ways to do things, despite the fact that "no one believes in my inventions!"

I actually had a conversation with his bus driver on the last day of school and she told me that he had told her that he was like Noah and the ark because no one would listen to him or believe him. But he still built a boat! Ha ha! I thought that was pretty cute. 

Congratulations Cruise! You're on to 3rd grade!

Saturday, June 6, 2015

Jett's Preschool Graduation

Well, he's officially done with Preschool! Whew! He is definitely excited about going to Kindergarten next year AND going to school with Cruise! Yay!!! I finally don't have to drive to two different schools every day! Woohoo!!! 
Preschool graduation was adorable. They sang a whole bunch of songs, the teacher played a slideshow of pictures from the year, and then she presented their diplomas. 
Jett has grown and matured so much this year. I've always treated him older than he actually is, unfortunately. I think I expect a lot from him because in some areas of development, he is "older" than Cruise. I have to constantly be reminding myself that he is only 5. But what a great 5 year old I have! His teacher always reminded me of just how nice he is to everyone and how everybody wants to be his friend. I remember dropping him off to school and the girls getting excited and saying, "IT'S JETT! HI JETT!!!" In fact, one day I dropped him off and one of the girls said, "Hi Jetty wetty!" I laughed so hard as I drove off. Jett was not too thrilled about being called Jetty Wetty. 
Congratulations Jett!!! We love you and are so proud of you!

Miles is 20 Months

This past month was a tough one for this kid. He spent all of it a little sick, then sick, then really sick. But the times he was a little sick and sick, he managed to muster up the energy to play outside. Which, as we all know, is his favorite place. Lately he has loved pushing and pulling things around the neighborhood. We dug out the old grocery cart and he pushed his water baby and toys around the neighborhood.
Miles continues to learn new words, but still doesn't say 'no', which is awesome. He either shakes his head 'no' or goes, "nuh uh". He still loves balls and was excited when Daddy found a free basketball hoop on KSL classifieds, which of course means that he had to go outside even more often to shoot hoops. I actually had to buy him new shoes because he wore out his other ones.

This kid, although more cautious than the other two, loves to "fly" and hang upside down. He loves to be tickled and is always up for a good snuggle.
But the month was mostly miserable. Miles started vomiting at night and we started to think maybe it was a milk allergy. We took him off of the milk and onto almond and it didn't seem to do anything. So after over a week of vomiting, we took him to see an on-call doctor who said it was "just a virus" and that we could put him back on regular milk. Well, we did that and a few days went by and he started having diarrhea as well. So we took milk away again but there was no change. So now we're going on about 2 1/2 weeks now and I decide to take him to see his doctor this time. The doctor decides to have me get a stool sample thinking maybe the good bacteria in his stomach didn't grow back after his last round of antibiotics a few months back. So I take him home for his nap and wait all day to get a stool sample and he never had diarrhea again! And he stopped puking! 

I thought we were in the clear. 4 days go by and he's doing great, and then...the throw up starts again. Two days into that and I take him back to the doctor who then tells me he tested positive for strep. So we have the poor kid get a shot in his butt and that is just miserable. I take him home and after three days he hasn't improved. In fact, he gets worse. He stops producing tears when he cries, he doesn't want to eat, hardly drinks, and doesn't have many wet diapers. So day 4 Dave decides we've all had enough and takes him to the ER first thing in the morning. Unfortunately, this is the same day as my sister Abby's Baby Shower, which I am throwing later in the evening. So Dave takes Miles and I stay at home and bake all day and drive the other boys to and from school. The whole time I'm so worried about Miles and just want to be with him. Dave kept me updated on everything. They gave him an IV and got him some much needed fluids, they ran all the bloodwork and even did an ultrasound on his abdomen. Luckily everything came up clear. They released him later in the afternoon and from there, he started to improve quite a bit. I am thinking he was just so dehydrated he just couldn't get better.   
Since all that, we actually put him on a coconut milk and almond milk mix which he now continues to drink. We tried to give him cow's milk again, but he actually prefers the coconut almond milk.

So that was end of April, most of May. I am hoping we don't have to do that again. Luckily this kid still loves us and trusts us despite putting him through all those shots, needles, and pain. He's such a sweet boy and I am so grateful he is mine.

Mother's Day

Mother's Day this year was awesome. I don't usually enjoy Mother's Day, but Dave put in a lot of effort this year to make it great and the boys are getting old enough to help out.

On Mothers Day, I awoke to the smell of bacon and voices hushing each other as they discussed their plan to bring me breakfast in bed. Cruise and Jett talked about how surprised I would be when they woke me up, so of course I had to close my eyes and pretend I was still sleeping. They came upstairs and quietly woke me up to their presentation of pancakes, bacon, blueberries with whipped cream, a banana, and orange juice. It was delicious!
Then just as I got out of the shower that morning, the boys came bursting in telling me to open my gifts. Cruise had actually made me a gift and card at school that he presented to me at the Ultimate Show and Tell that I just LOVE! So cute!
Dave gave me a box of truffles and a chocolate caramel apple from Rocky Mountain Chocolate Factory and a very sweet card. Cruise gave me a homemade hologram (the cup with the plastic spoon in it) and Jett gave me a Hershey bar that was already consumed by the two of them before this picture was taken. They also gave me a really cute card that they dictated to Dave.
Dear Mom, I love you because you love my inventions and your hugs make me happy. I love you. I care about Mothers Day. Thank you for helping me with my Autism. Mom, thanks for always helping me with science! Love, Cruise
Dear Mom, I love you Mom. And you love my things that I build. I love you because you took me to the zoo. I love you because you help me with the computer. You always help me with the tablet. I love you because you help me set the table. You help me with the pancakes. You help me with the...actually, that's it. Love, Jett
A few days later, Jett gave me a sand dollar ring from school that he said was also my Mother's Day present. I have such sweet kids. 
I had asked for a nap and chocolate for Mother's Day, but because Dave let me sleep in so late, I didn't even need a nap! So I asked him if I could use it another day. ;-)

Fathers & Sons 2015

This year was RAINY! They all came home with mud everywhere and my car...oh my car! It was covered inside and out with mud! But they still had fun.

Wednesday, June 3, 2015

Teacher Appreciation Week

May 4-8 was Teacher Appreciation Week. Since I am the room mom, I of course headed that up. Normal classrooms have one teacher with a whole bunch of kids. Our class has 1 teacher, 3 aides, a Speech therapist, and 15 students. So we had to be a little creative and figure out a good way to make sure they all got something. The PTA gave us our theme: A Week at the Beach, and put together a list of things for the students to bring for their teacher each day: Monday was flowers, Tuesday was favorite candybar, etc. Well, you can't expect our parents to buy 5 of each every day. So instead I asked the parents for monetary donations and made sure each of our teachers got something.

The Friday before T.A.W., I was to decorate the classroom door. I did a Hawaii scene and had each kid color a starfish and glued those on. It turned out pretty good I think.
Monday we gave the teachers plastic leis in the morning, and then in the afternoon I brought them each a perenial to plant at home. Tuesday they each got a couple of their favorite candybars, which was put together and delivered by another mom. Wednesday they got a pineapple, also delivered by another mom. Thursday they got a pair of flip flops in their favorite color, this mom sent me a picture of what they looked like before she delivered them. So cute!
And Friday they got a gift card to their favorite place to eat. Obviously Mr. Harris, their actual teacher, got a larger gift card as well as a gift card to Hobby Lobby (apparently a favorite store of his). Friday also happened to be the Ultimate Show and Tell for their class (this is where they spend the day visiting each other's houses). The PTA was having a catered lunch from Texas Roadhouse but because of the Ultimate Show and Tell, our teachers were going to miss that. So I used the rest of the funds to pick up pizzas for the whole class and delivered them to a park where they were taking their lunch between homes.
Overall, it was a very successful week. Stressful but successful!

Cruise's 3 Year Evaluation & IEP

I don't normally blog about Cruise's IEP, although, now that I think about it, I probably should. But this year was his 3 year psychological evaluation and so we decided to do his IEP 6 months early to sync them together. Feel free to skip down. This is mostly for my own records.

The usual gang was there (Principal Becker, Mr. Harris, Mrs. Lewis the mainstream 2nd grade teacher, and Mrs. Pruett, the speech therapist) as well as the school psychologist, an ancient little man who looked like he was ready to retire twenty years ago. It's almost overwhelming being there and having all these professionals explaining your child to you in numbers and charts. But I count myself very blessed to have such a wonderful team of professionals who adore Cruise. In fact, just as Principal Becker sat down, he looked at his paper and said, "Oh, it's Cruise! Oh, I just love Cruise!" He even compared him to his teacher Mr. Harris in the way he is always going and always has something on his mind.

So the first person to discuss Cruise was Mrs. Lewis, the mainstream 2nd grade teacher who pulls Cruise out of Harris' class for science. She said that he does so well in her class. He raises his hand, tries very hard to not talk out of turn, and gets a long well with his peers. She said he was very smart and loves going to science. She also discussed, along with Mr. Harris, where he is in comparison to his peers and the possibility of him being able to do more inclusion subjects next year, specifically reading.


Next up was the school psychologist. I think I'll just quote his results:

"Cruise demonstrated generally typical overall cognitive ability in the current intellectual assessment. A review of previous assessments indicates that his current results are a significant improvement from previous testing. It is noted, however, that this student was not consistent in his scores. For example, he had significant difficulty on the comprehension subtest, yet he produced normal scores on vocabulary and similarities, which produced an average verbal comprehension score. Cruise demonstrated some relative strength on the perceptual reasoning tasks and he has generally good visual problem solving ability. His working memory scores were his lowest area of functioning producing borderline performance.

On an academic assessment this student produced generally low-average to borderline achievement skills. His reading scores are borderline to low-average indicating that Cruise has some relative strengths in reading. He scored in the average range on the math problem solving test but he struggled with some writing skills.

An Autism rating scale from the teacher indicates that he has minimal characteristics of Autism. Cruise does have a diagnosis of Autism dating back to pre-school, but his current characteristics are minimal. His teacher currently rates him as having limited indications of Autism."

The psychologist did an autism assessment called the GARS. The GARS scoring says that and index of 85 or above, the individual is "very likely autistic", 70-84 means "possibly autistic", and a score of 69 or less is "unlikely to be autistic". Cruise scored a 68. He was also given the WISC-IV, which is an IQ test. Cruise received a score of 95, which is average. And finally, he was given the WJ-IV and got an 83 in reading and an 87 in math (both low average scores).

After looking at his scales and graphs, I was not surprised by his findings. On one hand, he has made so much progress over the past three years that his autism isn't as obvious or debilitating like it used to be. However, on the other hand, he still struggles significantly in other areas that qualify him to continue in the Autism Small Group class for 3rd grade.


Next was Mrs. Pruett, the SLP. She just adores Cruise and has so much fun with him when he goes to speech. She did a complete retesting of his speech as well and found that his lack of focus/attention, as well as his huge imagination keep him from answering questions the way they need to be answered. She actually said that she knew that HE knew the answers, but would go off on tangents or create a whole story about one specific thing she said in her question. And so, even though the scores she was showing me showed average to below average, she said that if she had tested him without repeating or helping him regain his attention, his scores would be well below average.

This was her assessment:

"Cruise has made really good progress on his speech goals this year even though his IEP was only 7 months ago so he hasn't had a full year ot work on these goals. His first goals was to restate and accurately follow a 3-step directions. Cruise can do this accurately about 50% of the time. When he is paying full attention, he can do it 80% of the time or more. His difficulties seem to be more related to attention and focus than to understanding or memory of language. Cruise's second goals was to maintain a topic not of his choosing over 5 turns without interrupting 80% of the time. Cruise does particularly well with adults and can maintain a conversation without interrupting about 60% of the time. This task is much more difficult with peers who tend to be less supportive than adults. His third goal was to follow directions with temporal concepts (before, after, etc.). This requires a much higher degree of concentration and focus, and Cruise is able to do this about half the time. Cruise's final goal was to identify 25 basic antonyms and 15 basic synonyms. Cruise has a good vocabulary, and he has mastered this goal. Cruise needs to be able to maintain his focus and attention to curricular information as well as be able to engage appropriately with his peers in conversation in order to progress in the general education curriculum."


Finally, Mr. Harris was up. He discussed Cruise's improvements as well as his difficulties. Here is his assessment:

"Cruise is a 2nd grader with a developmental disability that affects his ability to meet expected standards of state core. He requires specialized instruction, with general education mainstreaming where appropriate, in language arts and math to continue to progress through these standards. His IEP is only seven months old, but it was determined that, since we are convening for his 3 year evaluation, we would combine the two meetings and come up with updated goals.

Language Arts: According to recently administered testing and classroom observations, Cruise has made good progress with reading over the past year. He moved from a level 14 in the fall to a 20 as of mid-April. He improved his fluency by 10 words per minute to 60 and, outside of his wpm, every other score was at the independent level. Cruise is reading with good confidence, expression and improving fluency from level L, (well on pace to meet his previous goal of level M by this coming October). The Woodcock Jonson academic achievement test placed Cruise just below 2nd grade level for word identification and passage comprehension. His oral reading fluency and word attack skills were actually at a mid-2nd grade equivalence with significantly lower scores for spelling and other written language areas.

Math: Because of his love of everything science, Cruise is beginning to see the importance of math! With his multi-digit addition and subtraction, he completes the processes with very little support, but is also showing an emerging understanding of the underlying number-sense concepts. He is becoming very adept at both reading a clock and adding coins. According to the Woodcock Johnson, Cruise's ability to understand applied mathematic problems was in the mid-2nd grade level. His calculation was at the beginning 2nd grade level but his fluency was mid-1st grade. (Without support/reminders of efficient tools to use for those equations, he reverted to less-efficient methods.)"

Both his teacher and the speech therapist added some excellent goals into his IEP and I'm excited about all the progress he has made. However, at the end of the meeting, after listening to everyone's assessments, it became clear to me that the biggest, underlying issue that is affecting Cruise's progress is focus. He has a very difficult time focusing and attending to things. Even at home, I can't get that kid just to sit and eat for more than 5 seconds! So I asked everyone's opinion about the possibility of getting him on some sort of medication to help him focus. They all acknowledged that this was a major area of concern and told me that it may help significantly.

So that is the next step: meds. I have always been very hesitant to medicate Cruise, mostly because I wanted to be sure that I wasn't medicating him for something that could be remedied by behavioral therapy and consistently working on specific areas of concern. But this is an area really no one can help with, and so I feel good about moving forward with getting him some medication.